Gailsing

Thank you so much to you all. I am sorry I have been a while returning. Been struggling most days. carriemitch I also feel your pain. So the pain doesn't ease ? It's so hard getting up. Even with kids. I go to the crem and cry so hard. I don't want to forget her voice , smell and touch. She too always managed to laugh. I miss that very much. One I start crying i don't want to stop. It's so hard going to work with a smile as people think you're ok Now. I suppose this is all normal. I know I will never get used to this emptiness and miss the bond we had. How can we ever get past these such deep deep sad empty feelings . Love to you all

I don't know if I have depression or grief. I was very close to my sister and was with her when she took her last breath. She was brave became blind since 9 then living with an auto immune disease since 20 then a full time wheelchair user then getting cancer and being bed. Bound for 1 year. I feel sad she didn't live her life as she should have and she wasn't ready to die even at the end. It all haunts me. It's hard getting out of bed each day. I miss her more than I can express on paper. Any help please.

Thank you Kay x

Sorry meant to put hospice rather than at home! For the pain management?

Aw what a lovely bunch of people you all are. I hurt when I read your messages and you all have gone through so so much. My thoughts are also with you all. I have read the article and has valid points so thank you for that. My sister has increased pain relief today and now waiting for nurse to arrive as still in pain. I cry every single day. And my mind is on her constantly especially when my visits have been painful to watch her. Hopefully they will soon sort her out. There is no mention of hospice at moment as sis hasn't come to terms how ill she is. So you think would be a better idea than home nurse for the pain side of things? Thank you so so much. If I can help any of you please don't hesitate. You have given me strength. Gail x

Thank you so much for that Anne! My sister knows that her condition won't get better but I think she thinks it won't get worse. We feel if we tell her she will give up. She went blind age 9 and has an auto immune disease. She has been bad on her legs for years but never been paralysed. She has lost all feelings. She is cared for 24 hours a day. Her pain is under control. My mam thinks she will go on for years. You sound like you are experienced in mscc No one has given us a time. I know by the internet is has a short life expectancy. I feel cheated, empty and useless. Also guilty for moving her the day she fell as I feel if I hadn't she would have more feeling. We thought it was a relapse of her auto immune disease. We had no idea it was this. It is secondary to breast cancer 8 years ago. It's on t5 and t6. Does it usually spead fast? It isn't on organs. I have two children and started a new Jon a month before this happened. Work helps but the fast few days even that it hard to go there and act normal.

Hello I can relate to you as I too am going through similar thing. My sister is 47 and was diagnosed 2 months ago with terminal cancer. We are best friends. I feel like I am sinking into grief or depression don't know which. All I can say is make the most of your good days and enjoy the moments you have together. I am muddling through as you prob are too. Gail

My sister is 47 and was diagnosed with metastic spinal cord compression two months ago. She is my best friend and I feel I am sinking into grief or depression. Don't know which. She hasn't been out of bed and is increasing her orpine rapidly. I can't get my head around it. Any comments will be read. Thank you for reading