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mlg

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About mlg

  • Birthday 02/23/1948

Previous Fields

  • Your relationship to the individual who died
    spouse
  • Date of Death
    Jan. 18,2008
  • Name/Location of Hospice if they were involved:
    NA

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  • Your gender
    Female
  • Location (city, state)
    Central IL

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  1. Kay, Since Tom died I tried going with my one daughter to her in laws and felt out of place there so two years later I tried my other daughters grandma in law. The people were nice but I had nothing to talk about with them so went home early . Tried again the next year. Last year I bought a turkey roll at Walmart and some Bob Evan's mashed potatoes , green beans and cranberry sauce. Had my own little Thanksgiving and watched Hallmark movies all day and had the best Thanksgiving in 11 years. Sometimes it's better to be by yourself.
  2. Johnny, I was reading that your anniversary of Renee's angelversary is coming up soon. It is amazing how some things change after that first year. It's not that you forget but more of the "good" times come to the forefront. You still have that knot in your stomach. Not sure if that ever goes away, but the hurt is softer. I'm glad you already have plans and if tears come , they come. Tears are God's way of cleansing our souls. It will soon be 12 years for me and I can still remember the first time I laughed. It was like , what was that sound. I'm sorry you didn't get to have a long and wonderful marriage and I don't know how long you dated but try to remember the happy things you did together. Will keep you in my thoughts. I hope you have someone to visit on Thanksgiving.
  3. Gwen I have a friend that sounds a lot like you. She was in constant pain and worked as a nurse so on her feet a lot. She has had so many procedures to try to control the pain I probably couldn't count them. Several months ago the put in an interthecal pain pump and she said it is the first time in a LONG time her pain is pretty much controlled. You might ask if that is something that would help you. I'm really not sure which type of Dr put it in but if you need more info about it I could ask her. Also when you talked about Alladin have you thought about getting Disney+? It is 6.99/mo and has 5 different programs you can go in to. It has the old Disney movies but also new ones not in the theater. If things like that can soothe you it would be well worth trying and if you don't like it, cancel it. Can totally understand the eating thing. It had been several years after Tom died that I went to KFC and had to literally make myself sit there and finish my meal. Hated EVERY second of it. The only place I can sit and eat by myself is Panera and I think that is because when I used to go shopping that is where I would go.. At home we always ate at the table and now unless someone is here I never eat at the table. Only time we would eat in front of the TV was during the NCAA basketball tournament games and now I eat there almost every night. I have to say that I got an airfryer oven for christmas and it has been great because it is small so when I put food in it doesn't look lost and it is moist and tender. It took me 7 years to really want to cook again. I still wish someone else would clean up the mess. I hope you find some help before long.
  4. We had a patient once that we just got her blood pressure under control and the company notified us that they were no longer going to pay for it. This went on for 2 more times in 6 mos. How are the doctors suppose to do the best for their patients when they tie their hands all the time. If it ain't broke don't fix it. The same things with precerts for certain radiology tests. Do some jump to do them before trying a more conservative treatment first? Yes and I want to scream, you know they aren't going to do this without x,y.and z. Are there other times when it should be perfectly plain that the pt needs this. Yes, so don't give me a bunch of trouble. Maybe someday they'll get this all figured out. I'm sorry so many of you are going through all of this. Just keep advocating for yourselves.
  5. Jen, Hope you listen to this and know that no matter how sad and despondent we are there is hope.
  6. Marg M I know what you mean about having your faith. If I didn't have God in my life I don't know what I would do. I don't understand why this happened and I can't say I'm happy about it but I accept God's will with a heavy heart. Tom had a perfect physical including colonoscopy 3 weeks before his diagnosis and nothing was even a little out of whack. That's when you say thy will be done. I hope someday I will understand.
  7. Kay, I'm with you about wondering if you will truly ever get used to this life. There are so many things I want to say and he's not here. He would be holding me and telling me he loves me when others are making me feel like when I was in high school. I'm only good enough when they need something. They tell me how much I have helped them through this time and they are sorry that they didn't realize what I was going through until they went through it. Everything is fine if I invite them to do things but do they ever include me. Nope. Feeling sorry for myself recently and my poor dog has to listen to it all. Poor thing.
  8. Kay , Your one dog died didn't it? Is Joe one you inherited because of all their other things? You are really nice to leave all those apples for the deer. You said they were really tart. Are they transparent apples? If so they do make really good apple sauce. Not as big as other apples , we just used for applesauce. Is it getting cold up there. It's been chilly here. There was a 16 degree swing the one day. Now it's more like Oct. weather. We had our Chilifest this weekend and had really good crowds. Last year or the year before it was almost 90 and this weekend did good to get to 70 and that's more chili weather. Take care and get geared up for winter.
  9. I live in a town of 11,000 and we have someone here part time. Otherwise it takes about 25 minutes. I'm sure you will figure it all out. I'm lucky to still be covered by my husband's insurance and hope it continues. I'm always waiting for them to drop the shoe. Have a good day ladies.
  10. Jen Most places have an actual room or building you can go to to discuss things if you need face to face rather than phone.
  11. Do you like to be called Gwen or Gwenivere? Our hospital used to have someone who would help you pick the best insurance to help you with your diagnosis and your meds, do you have anything like that? Our Senior Citizens Center helps also. As for medication help a lot of the pharmacies will help you with which one will give you the best prices. As a nurse who works with insurance almost every day that I work it can become very, very frustrating.. I can only imagine when it is influencing your life how frustrating it can be. I wish I was near you (which I don't know where that is ) so that maybe I could help you with things. I will hold you in my prayers.
  12. Gwenivere I went back and read your first post. Your analogy to a book is so true. Tom always hated Christmas so you'd think Christmas would be better without him but when I got the stuff out to put up the tree I couldn't do it. All the ornaments were our book. About our family and the places we'd been through our 38 years together. You mentioned that you like dogs. Do you have a dog? I'll tell you when I am really down my fella is my only salvation. He is so happy to see me when I come home and always goes to bring me one of his toys as a present. When I 'm really low he listens and never talks back. He is a warm body next to me in bed. So if you don't have one it is something you may want to consider it.
  13. Gwenivere, Just sit down and take a big deep breath. Maybe find a time every day that even if it's just 10 minutes that you just sit down, close your eyes and take some deep breaths. Maybe have a cup of tea and a cookie. I don't know if you are a religious person but maybe say a little prayer for God's help at the same time if you are. Do you have friends that can support you. I have found that is my best thing. Have they given you a website about your new insurance so you can see if your Dr's are on it or if you know the name of the insurance call your Dr's office to see if they accept it. That would help take one thing off your plate. If they don't try to find someone that may have the new ins. already and see whom they see. As far as the Dr. you saw that wasn't covered; did you get the name of the person who told you that you could see them. If you did I'd try to fight the ins. A hint from this point on when you speak with ins. always put down the time, the date, the person you are speaking with. As a nurse who deals with this a lot it can save you a lot of time and aggravation down the road. Just take baby steps not giant ones and it will not seem so overwhelming. Hope something in this mess I wrote helps you. I don't get on here as often any more and have only seen a few things about you so don't know your whole story
  14. Kay, I am so sorry to hear about Arlie. I look at my Shadow and he is 10.5 and getting a little white around the mouth and I don't like that. Our other rescues lived to 16.5 and 17.5. I hope he lives to about 25, but just like with Tom I don't want life to be hard on him either. I was laughing about Arlie tearing up everything. For the first 14 months so did Shadow but one of his favorite things was electrical cords. My 9th grade science teacher really saved me a lot of money because he taught us how to change cords and plugs. He would also tear all the squeakers out of all his toys. Suddenly when he turned 15 mos those toys became his babies and nobody better hurt them. He even knows what squeak goes with which baby. I also learned if I left the TV on he didn't tear things up. Guess he thought I was still there. Glad to "see " you again but hate that you have more pain in your life. Do they have low income housing around you or are you still set on living in the country?
  15. Marge, When you were talking about the oxygen and just give it to her. The problem is that with chronic breathing problems it is not that easy to adjust. Most people think they are having trouble breathing so give them more oxygen when actually the opposite is true. A normal person may get 8-10 L where a person with COPD only gets 2-3L. otherwise the carbon dioxide takes over and further suppresses their breathing. MLG
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