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Grief Healing Discussion Groups

lotus blossom

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  • Posts

    2
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Previous Fields

  • Date of Death
    pending/dementia
  • Name/Location of Hospice if they were involved:
    Buffalo, NY

Profile Information

  • Your gender
    Female
  • Location (city, state)
    Norwalk, CT
  1. Hi everyone. Just wanted to introduce myself and say thank God for a forum like this. My mother is only 73 years old and for 5 years I have watched her slowly decline with dementia. This is a hellish disease in that she's gone even before she's actually gone. Someone said it's the long good-bye. Now in the late-stages (she is starting not to feed herself) she is in a very good nursing home in Buffalo, NY but I live in CT and I don't go back enough to see her. Some of it's the traveling, but honestly, some of it is that I find it too painful. Although hI have a lovely and supportive husband, I feel so alone in this. I have a brother with severe alcoholism who lives near her (that's the reason we didn't move her near us -- he wouldn't be able to visit her at all) but he cannot help in the decision making and adds to the chaos and crisis. Today, I have a conference call with him and the nursing home to come up with a plan after he showed up drunk, wheeled her into the parking lot and she was almost hit by a car. I want her to see him (even if she doesn't quite know who he is anymore) but am afraid that his nonsense puts her at risk of being hurt or thrown out of the nursing home. All I want to do is to escape this place of stress and pain but I know there is no way but through it. That's it. Thanks for listening.
  2. Dear Lynn, I am having a hard time finding the right words to express how sorry I am for your situation and your pain. I saw my stepfather die in hospice and the end stages are almost surreal. May God bless you and keep you. I am so glad you found this place. I am a newbie, too (my mom is at end-stages of Alzheimers) and your post made me feel like I am in the right place. Thank you.
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