Hello, I'm soon to be a member of the club nobody wants to join.
My husband was diagnosed with end-stage liver disease in June of this year. The doctor told me that while he expects Joe to last six months, he doesn't expect him to last twelve.
In the meantime, my 93-yr-old mother who lives with us has the beginnings of congestive heart failure.
In my lighter moments, I reflect that it may be a race to the finish between those two. I am sole caregiver to both.
While his cousins and several aunts have been helpful and wonderful to us, his mother and siblings have been awful. They do not call, will only visit when specifically asked, and one brother even lives right next door and goes a mile out of his way to see their mother every morning while ignoring his brother. Fortunately, in this instance, Joe doesn't know he's terminal. I do, though, and find their behavior both inexplicable and inexcusable.
I haven't told Joe because in the 30 years I've known him, he's never been able to countenance the idea of his own mortality. He has struggled and made great strides since his six weeks' hospitalization last summer. I feel that if he knows, he'll give up and die faster. And be frightened and miserable during. He doesn't deserve that. He knows he coded in June and that his health is precarious. That's enough.
I had always considered his family my family, but after seeing the way they've treated him (and treated me, too), I am no longer able to do so. His mother even ran into his best friend from high school who was making his first visit "back home" in three years, and didn't say a word to him about Joe's condition. It's bad enough she won't visit, but she's also effectively running off those who would, isolating us further. I emailed him after I heard about that, and he said that had he known, he would have come right out. Now he probably won't see him before the funeral, if then.
This time of year is hard, not because of the impending holidays, but because we'd travel in October and November for a couple of large book sales, making a journey and a fun day of it, and this year I've realized we've already done that for the last time.
It is hard to see how thin and wasted he's become. It's hard to see his once-fine mind (near-to-genius IQ) and quick wit corroded and dulled by disease. It's hard to bear when his genial nature and wonderful sense of humor are overwhelmed by toxins and turned into irritability and paranoia.
He's been my best and primary friend for 30 years, and he's going away.
My mother and I aren't especially close--neither she nor my father particularly wanted kids, but that makes things with her both easier and harder.
It's hard to have to fight the medical establishment (treatment so bad that I had to send a letter of complaint to the Board of Medical Licensure), Social Security, his family, and, when both he and Mom are out of touch with reality, my own household. Not only that, but the power company had tree trimmers come out and clear 20' either side of the power line on this road. While they told me they were only trimming some poplars and "brush", they took out most of my dwarf fruit trees, and left all the debris lay, so if I still have the energy, I get to fight them too.
All those in my immediate life who loved me are leaving, and are taking the person I was in relation to them with them. Everything in my world is disappearing except for bills.
Any more, I feel like the slow antelope in the herd, with the lions converging, and have no one in my life I can talk to.
So here I am.