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Merrien

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Everything posted by Merrien

  1. Thank you both. I'll have to check out grief share, I hadn't heard of it before. ALS is indeed an awful disease. I hope we can find a cure. My mom and I plan to participate in the walk, probably next year. Yeah, not sure if my friend thought she was being helpful or just couldn't help herself, but it wasn't the thing to say at his service, or maybe ever. Hope you have a nice weekend.
  2. Thanks for adding me, to the admins. I thought it would be helpful to hear other's experiences as I go through this situation. My father passed away in February from ALS. He'd only had a diagnosis since the July prior, so it went quickly. A blessing to shorten suffering, I guess, but hard of course for those of us left. I spent probably 2-3 months in total shock. I have lost pets, grandparents, distant friends, uncles, but his has been the closest one to me. They're all hard, but this one has been the closest and hardest so far. I fear my mother's death even more now, which I know is somewhat irrational as she is in good health at the moment. But someone at my dad's service told me "my father's death was hard, but nothing near as hard as my mother's." Felt like a stone dropped into my stomach. I am 44, I have a 5 year old daughter I am full time caregiver for. She starts school in the fall. I am trying hard to be a good mom while I'm going through this period. Anyways, thanks for this space and giving me a voice here. I wish the best for all of us.
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