Thank you so much for this Marty, there’s a lot of information here for sure and i’ll Go through as much as I can.
It doesn’t help the fact that my family is not telling me everything and because I’m abroad, I can’t just pop by and check the tests and severity of things myself making me feel completely impotent.
I asked my father to send me his tests but he still hasn’t done it as I want to get a second opinion from another doctor, not sure if he’s not sending it to me to not freak me out more or something else.
All the help I could give from a distance was given, as I know I can’t go much further as it will start putting my stability under risk, so I’m at peace with it, still deep inside I believe I have that line of thought imagining that I could operate a miracle or maybe to expect for one.
My plan, if life allows, is to get there around April/May to see him and sort out all the practical things, documents and leave everything ready as I’m sure no one over there is really thinking of it... anyway things are too overwhelming right now and having this space to talk and find information is great.
Would be great to know about other people’s similar experiences.
Thanks x