It started in 2015

[Brooke H.]

I’m 33 my husband is 50. In 2015 my husband was diagnosed with sarcoidosis. His lung capacity was at 6 liters then, now it is at 2.6 liters and decreasing at a much more rapid pace. Over the next few years he eventually will no longer be able to take in any air. I feel like he’s already dead but I’m watching him die. 

[kayc]

@Brooke H. I am so sorry, I know this has to be the hardest thing in the world, both for him and for you.  Anticipatory grief is like watching them die in slow motion, every agonizing painful thing.  My heart goes out to you.  I encourage you to continue to come here and voice yourself.  When I went through it years ago (before internet) I had no place to turn to, and as a caregiver, had no time to travel a long commute for a support group.  (((hugs)))
https://www.griefhealingblog.com/2009/11/anticipatory-grief-and-mourning.html
https://hbr.org/2019/08/how-to-cope-with-anticipatory-grief-at-work
Anticipatory Grief and Mourning: Suggested Resources