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This can't be real...


Clematis

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Hi Laura,

Just checking in to see how you are doing.   How are you?  I'm so glad that this pandemic is somewhat behind us.  My small family in IL are doing ok.  My youngest granddaughter is five and she has worn a mask for the two years of her schooling.  Today was the first day her class did not have to wear a mask.  She is in a Montessori school and the virus has been very light in her school.  My Nicky (7th grader) likes school.  He has been in Lacrosse for two years and likes it.  He is all about athletics now.  My oldest grand is doing well in high school.  She wants to be a director.  She likes to act and she is a good singer.  

Let me know how you are doing when you are able.   I'm still here in AZ and loving it.  

Anne  🥰 💜 💕

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  • 1 month later...
On 3/7/2022 at 6:36 PM, enna said:

Let me know how you are doing when you are able.

Hi Anne - I am still slogging along and still dealing with lying doctors. I stopped two of the chemo drugs in the beginning of February for a number of reasons. Partially it was due to the developing neuropathy from Carboplatin, and also it was because it was dawning on me that they had never given me any numbers and I had been given so much wrong information, due to errors, incompetence, and deliberate deception. The first oncologist was awful, and was replaced by a woman who tried to get me to go back on the Carboplatin by telling me Carboplatin doesn't cause neuropathy. I said ok, but later refused the drug because I went home and looked it up, discovering immediately that her statement was untrue. An error by a mature oncologist about one of the side effects of one of the most commonly used drugs for breast cancer...or a deliberate deception? (I think that's called lying.)

Turns out it was the latter, and just today the NP at the practice told me that the denial of the Carboplatin-neuropathy connection - the reason for the lie - was that this side effect only affected 4-5% of people who take Carboplatin. My knee-jerk response was to point out that I AM one of the 4-5%, so for me that is actually 100% likely to increase, and significantly. The NP responded with a pedantic little lecture about how they do everything possible to get patients to comply with what the medical staff believes is best for them.

I can't help but think that lying to patients about proposed treatment totally removes the "informed" part of Informed Consent.

Anyway, I am still terrified. But getting along. I am struggling to get something of my art life back and am thinking about going to a jam next weekend. Also, I have started drawing/painting again and my subject is birds, a novel one for me. I am also painting rocks, something that has fascinated me since I was a child. I am mystified by the process/materials since I am a watercolorist. Nevertheless, to my astonishment, my older sister is helping me with the process/material part. As an MFA artist who teaches art, of course she could easily provide this info, but the fact that she jumped in and offered to help me was a surprise. This is the sister who told me she was divorcing me after our dad's death because I wouldn't give her my dad's banjo, which he gave me 9 years before he died.

My other sister has also been in communication and seems to also be actively engaged in a supportive sisterly relationship with me. There have been so many years of icky behavior from both of them, I'm a little doubtful about whether to trust what I see as a real change or if they are being nice while I have cancer...

 

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My friend went through all of the chemotherapy, it literally destroys you!  She suffered rash/burns, neuropathy, hair loss, you name it.  They wanted to do surgery and radiation, she contacted a specialist from out of state, who told her to do Keto (I've been doing Keto 2 1/3 years now and am amazed at all it has reversed/healed in me!), it's not a fad diet, it's been around for a century and I'd trust it with my life!  Oh yeah, I am!  I'm on it for life, amazed at the results.  I didn't do this for weight loss, that's just an aside, I did it to control my diabetes, it healed my kidney, liver, Fuch's Dystrophy of the corneas (night blindness), neuropathy (still have some loss of feeling but pain is gone), and it's slowly but surely doing it's work on a mysterious condition I've had for a long time that the doctors won't even look into.  Got off diabetic Rxs and am controlling my Diabetes, cut my BS numbers in half!  Lost 75 lbs and kept it off.  More energy than I've ever had...

I couldn't agree more about our "medical system."  (Follow the $ trail.) Watch First Do No Harm (Youtube, Netflix, etc.) Meryl Streep, excellent example (true story).

Wishing you the best, I'm glad you're nurturing your creative bent!

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  • 2 weeks later...
On 4/27/2022 at 5:03 AM, kayc said:

More energy than I've ever had...

Kay, that is really awesome! I am so glad to hear that your health has improved so much. I really fear these doctors; what they want me to do is so extreme, and I fear that if I totally go along with it I will destroy my own health. There is a lot of research about minimizing treatments, alternative/complementary strategies, and so on. But my doctors have never heard of any of that. From what I can tell, my risk of recurrence is low, but they haven't ever really told me anything about my prognosis. I think they know my risk is low, but are using vague but alarming comments to get me to go along with their plan. They are treating me as aggressively as if I had metastatic disease, but it's scary. It seems like I could be throwing my life away if I make the wrong choices, but no one will be straight with me. 

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My friend consulted with an oncologist specialist from out of state and she is the one who told her to go keto.  (I'd suggested it a year ago)  Her husband has All and is diabetic, he's doing it with her.  I'm excited to see the results that will come from this, just as I've had mine.  It repairs brain cells in dementia!  If I had cancer I'd probably opt for surgery & Keto, but skip the chemo & radiation because we all know what that does and I've seen what it does to one's body.  It's a personal decision no one can make for you.  But listen to your intuition, don't be SCARED into it by doctors!  Some of them are pretty bullheaded and headstrong!  Hey, I can be too, it's my body, my life!

I posted this in my diabetic group:
 

Kay Oxford

Moderator

Group expert

My husband and I attended Diabetic classes as he was diabetic. I didn't allow sugar in the house, we ate whole grains, fruits/veg as doctors said, but nothing changed. He died nearly 17 years ago, heart attack with diabetic complications. Why, when we were doing what they said! A few years later I too was diagnosed, did what I was told, took my Metformin, meanwhile my numbers kept climbing, so they raised the dosage, and eventually added Glimepiride to the mix (I couldn't handle Glipizide as it kept dropping my numbers, too erratic). When my dog was diagnosed with cancer, 6/6/2019 my FBS went up to 185-205 and stayed there. He passed 8/16/19 and the numbers never came down. Meanwhile my son and George kept talking to me about Keto, my son showed me the scientific data on it (he has three engineering degrees, you know engineers, always about the facts!) Not pushing, just giving me info...

Finally I realized my numbers were not coming down and it was time to do something about it. New Year’s Day 2020 I began Keto. I cleaned out my cupboards of the carbs, it echoed when I was done! I began buying the "weird things" I couldn't spell or pronounce (Erythritol, Xanthan Gum, etc.) and began researching diabetes myself. I'd already joined this group and found it very helpful. I learned, little by little, checking out things I heard and read.

Keto has been amazing! I planned this not to just "lose weight", 75 lbs., but to right my diabetes! I had not expected all of the fringe benefits I began to glean from it! I was shocked when my triglycerides went from 276 to 93 inside 4 1/2 months! My cholesterol improved, as did everything! My WBC and calcium had been high for years, no explanation from the doctor, now they were normal! I later read it was related to the diabetes. I'd had IBS, now gone! My neuropathy used to hurt so bad, I was surprised when it quit hurting! I'd been diagnosed with Fuch's Dystrophy of the Corneas years earlier (night blindness) and discovered when I had an emergency that I could now see to drive at night! I'm still amazed when I drive at night, each time it feels like a miracle to me! I wasn't prepared for the incredible energy I now have and how well I feel! When I got a nasty dog bite, I mean really bad, the doctor said it'd be hard to heal, it healed fine! Again and again I've seen this. My immune system is optimal. When you've had Diabetes out of control for 11 years, you expect it'll take time for the liver and pancreas and kidneys to heal but they have! (I was diagnosed with Cirrhosis of the liver years ago), everything is fine now! I feel indebted to the scientist that first discovered this operative we now call Keto, I'm on this for life and can't imagine going back to my old ways! It's been over two years now and I feel like a walking miracle! I'm so grateful to George and this site for walking me through this!

 

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1 hour ago, kayc said:

I posted this in my diabetic group:

Thanks, Kay - what an amazing story!

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Got my blood test back, platelets too high, that's most concerning, they didn't test me last year between switching doctors and Covidj, so all I have to go by is two years ago before my mysterious throat condition, no one knows what's causing it but it's greatly improved, no more white spots but tongue glands still inflamed, although also improved, been nearly 1 1/2 years with it, I'm pretty sure that's behind it.  

Ahh but my IR (triglycerides/HDL) is 1.1!  (supposed to be under 1.5)

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  • 2 weeks later...
On 5/13/2022 at 6:49 AM, kayc said:

Got my blood test back, platelets too high, that's most concerning, they didn't test me last year between switching doctors and Covidj, so all I have to go by is two years ago before my mysterious throat condition, no one knows what's causing it but it's greatly improved, no more white spots but tongue glands still inflamed, although also improved, been nearly 1 1/2 years with it, I'm pretty sure that's behind it.  

Ahh but my IR (triglycerides/HDL) is 1.1!  (supposed to be under 1.5)

That is so great that you are getting better, Kay! I am really happy to hear it.

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Thank you, still praying for you and my friend Iris!

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