cindylt Posted February 21, 2013 Report Share Posted February 21, 2013 He lost his fight to live on Feb 1, 1013, after being in the hospital for two months. He was sick for months prior to that, but we did not know what was wrong with him, even with much testing. He could not eat, because he had sores in his mouth, and he started losing weight, at first it wasn't too noticible, but after a few months, we knew something was wrong with him. We went through this with him all of last spring and summer and into fall. He had some bioposies done on his throat in early Oct, didn't show anything, but they kept the cultures, to let them "grow". He went from being able to drive the few days before Thanksgiving to relatives, to me having to drive him home, and get him admitted in the hospital the next day. A few days after being in the hospital, tests results came back from his throat cultures a month prior, that he had a rather uncommon fungal infection, histoplasmosis (an airborne fungal infection from bird droppings), he also had genectic hemochromatosis, iron overload in the liver. The intial treatment of histoplasmosis, is a different antibiotic, very stong, and wasn't available in our home town. So my husband was transferred by ambulance Nov 30, to a bigger city, that could monitor him better and give him this antibiotic. Because his throat muscles were so weak, just after a few days, he aspirated, was blue, and had to have an emergency intubation, in CCU for more than a week. He went in and out of ICU during Dec. and Jan. His liver was failing, and the histoplasmosis had dissemenated to every organ and part of his body. The doctors told me early in Dec that he was not going to make it, but I refused to give up on him, and believed in the power of prayers and miracles. There were so many times the doctors said in Dec,, it is just going to be a few hours or days for him. But we had him until Feb 1. He could not talk because of his intubation tube and towards the end his trach tube, but we managed conversing, even as difficult and frustrating it was for him much of the time. My poor husband, in all this time, could not have a sip of water, nothing by mouth, and he was so miserable at times just begging for a few ice chips, but he was such a good patient. Between his liver failure and the histoplasmosis, going every where in his body, including the brain, it was hard on us at times, because his short term memory was gone, and we had to explain to him often, why he was in the hospital and what was happening to him. The day before Christmas, he begged to go home, for just 2 days, he even told me the doctor said he could (not). Unfortunately with his condition we had too many of these kinds of conversations. But there were so many times he would remember everything, so it was a weird up and down thing for us. In all this time of him being in the hospital, I was staying in a motel room, a few minutes away. The morning of Feb 1, while I was in the shower, (my cell phone always being close), I hear my phone ring and I knew it was not good. Sure enough, his blood pressure was dropping dangerously low. Got to his hospital room, and their were nurses and staff all around him, my Mom and I went to into the room and some lady, nurse or whatever, that we had never seen, tried to not let me in the room, to tell me to step outside for a moment, I was confused, thinking of obeying her orders, but my mom stepped in and said, no she wants to be by his side, and she just brushed this woman aside (thank you Mom!). If I hadn't have gone in there, when this nurse was not wanting me to, I would not have been able to say hello or goodbye to my husband, he was a bit aware when I saw him, told him I loved him, he mouthed the same, but he was taken to the ER room after, and I was not able to talk to him again, as he was unconcious. Fortunately our son was able to make it up, and was with me. There is nothing worse, than watching those darn monitors, which we did. We were watching them closely and knew it wasn't good, along with him being unconsious, with us around him, the heart rate monitor bleeped and stopped, the worst moment of my life! I will never be the same. My pain is so raw and new, sorry for the long post, but just needed to type it all out. Our son was with me to see his dad pass, but our daughter lives in another state, one of the worst phone calls I have ever had to make, to tell her, her Dad had passed. I dont know how to deal with this grief. Their is more to me about this, but like so many others before me, I am sure, I am just lost and numb, I still do not believe he is gone. Link to comment Share on other sites More sharing options...
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