MartyT
Perhaps the strangest thing my mother's death has done is it is making me more aware of how much I want to be my authentic self. I have a great neurologist, primary physician, podiatrist and counselor and that team has come after years of dealing with unkind, insensitive and often cruel medical professionals. I want to focus on organizing my creative art center (right now most of my things are in storage but I am slowly getting it functional) and finish organizing my new apartment. After the MRI and that discomfort I am holding off from the spinal tap and working on forgiving myself. That might sound odd but I have felt my illness so upset my family members they seemed to feel I was trying to get special attention and they decided (for the most part) to not give me any. I attended a MS support group years ago for awhile but one of the cruel things about this and similar chronic illnesses they are so difficult to diagnose and difficult to adjust to so at times I have not been the gentle person I want to be and shame and guilt were never far from me. But with my mum dying I feel I have to or perhaps I want to be kinder to myself because of all the members in my family she was the only one who consistently helped me financially without becoming bitter and tired of me. Other siblings, like some friends become impatient with someone who is going to need help and support for the rest of his/her life. Even I was fed up with me! So, at first I decided to ignore the fatigue issue that comes with the illness and do what I can to generate income using my talents. But that hasn't worked. Seeing my mother in the hospital dying in front of me, not able to breathe, in pain, unable to unbend her knees, looking scared and confused haunts me because my illness comes with certain conditions that might lead me in a similar direction. So, now my goal is to love myself more, to work less at being right and more on being me. I have had a very tumultuous life (four country immigrant, preacher's kid, etc) and somehow missed out on just being happy for happiness sake but gained determination, resilience, creativity, a global perspective and passion. As soon as I shared my story I felt free and now I will continue to discover what I want, who I am and what life can offer. I bless the fact my mother was in my life and she in mine and thank you for taking the time to be kind and respond. Den