I am in the same boat right now, and looking for answers on what to expect. My mom is on hospice (hospice of the Valley, in Mesa AZ). My mom in in end stage CFH. The nurses are coming every few days to wrap mom's legs (they are leaking from severe edema). Mom is on morphine and anti anxiety drugs and she is totally out of it. She is no longer able to do anything by herself. My father hired aides to take care of her. She sits propped in a wheelchair almost completely unaware of what's going on around her. I don't know how long she will continue this way, and I can see my father's health deteriorating as he tries to help care for her. I do wonder if the morphine is responsible for some of mom's mental decline, or maybe it's just lack of oxygen to the brain. We didn't use the morphine for almost two months after hospice delivered it, but now mom asks for it every few hours. I do wish the hospice workers would have told us more about the dying process. I'm getting my education online.
