Hi I found this website off another one about ADC's. My mom passed on July3, 2006 and i am having a very hard time. I was my moms caregiver for 18 mos before she passed at a nursing home with hospice (she had only been there for one month). She never wanted to go to a nursing home so i took her home with me. She was completely bedridden with a foley cath, and feeding tube . She only took meds by the tube and liquids. she ate all her food by mouth cut up real small. she suffered from copd, chr and aspiration phneumonia. i washed her, feed her and medicated everyday. She lost the ability to walk and her hands stopping working well enough to feed herself. We did do pt at home but she did not improve so it stopped. When she came home in Dec of 2004 it was 3 days before christmas and the dr said she only had 6 mos to live. She lived 18 mos at home with us. I have two boys age 7 and 11 who loved her and she loved them. I miss her alot and am not sure what to do with my self anymore. She had alot of emotional problems also and our family was very dysfunctional. I am one of five and i am the youngest 38 and the oldest is 56. Nobody wanted to take care of her which i understand was alot but they never wanted to help either. they wanted her to go into a nursing home the day in dec. i had made her a promise that i wouldn't put her in one and i just could not break it. my one brother cut off contact long before this b/c he could not deal with my mom or the problems (he has a masters degree in social work) my one sister decieded to pick up and move to florida when my mom is her sickest b/c honestly i believe she didn't want to have to deal with it. then does not tell she has moved until she it there for almost 3 weeeks. the other two are wrapped upin their lives. i am not saying i am perfect but i just wanted them to be supportive of my decision and give relief help so that we could have time off. my mom did not have the best insurance and the only help we could get was 2hrs a day for a aid and the visiting nurse once a week who was a angel. the whole jist of this is that they do not speak to me at all and blame me for alot of things. it may sound crazy but i grieve for my mom and also for the loss of my family. we have not spoken in over a yr. i am also dealing with alot of quilt . things i should of done differently with my mom. sometimes i would get mad at her b/c i was so emotionally, mentally and physically tired. i know that my mom loved me very much and i loved her or i wouldn't of done what i did. the last thing she said to me was i love you. she told me she loved me more then i would ever know. i just wish i could see her again to say i am sorry for anything i needed to say it for. some days i don't thnink i can go on the pain is so intense and i just keeping going over every scenerio in my head. i cry most of the time, can't eat, have chronic diar and overall sadness. when will it stopp hurting. i am in therapy and have started taking zanax b/c i was having so much anxiety and panic attacks. i can't stop thinking about it all day and night. the pain is so bad i have never felt this bad. i never wanted my mom to die i wanted her to keeping fighting , i know now that she just couldn't. pls someone tell me when it gets better, i need to go on i have two beautiful little boys and a wonderful husband but i am feeling desperate. i grief for the loss of my mom, my family and all the things that could of been. if anyone has any advice i would appreciate it.