R.Everit55 Posted April 21, 2016 Author Report Share Posted April 21, 2016 Our little miracle girl Gracie is doing better off the vent etc... And up to 3lbs 11oz. She needs to be stable for a significant amount of time and weigh over 5lbs before considering going home. One day at a time. She has such personality for a tiny little lady. And she loves to cuddle and being talked to and smiles. She loves holding Grampy's finger and I melt with her affection. She's so little but has huge heart. Butch 5 Link to comment Share on other sites More sharing options...
enna Posted April 21, 2016 Report Share Posted April 21, 2016 Oh, Butch, this has put a smile on my face. What good news. I know it is one day at a time and I'm so very glad for you and the family. Sending love to all in the family. Anne 5 Link to comment Share on other sites More sharing options...
mittam99 Posted April 21, 2016 Report Share Posted April 21, 2016 Keep on rocking Gracie! 4 Link to comment Share on other sites More sharing options...
Guest Posted April 21, 2016 Report Share Posted April 21, 2016 Good News!!!!! She is a fighter!! Link to comment Share on other sites More sharing options...
Margm Posted April 22, 2016 Report Share Posted April 22, 2016 Butch, this has actually put a smile on my face after two rough days. You keep fighting little lady. 3 Link to comment Share on other sites More sharing options...
kayc Posted April 22, 2016 Report Share Posted April 22, 2016 We're all pulling for her, Butch! And I have all my prayer groups praying for her. 3 Link to comment Share on other sites More sharing options...
Gin Posted April 22, 2016 Report Share Posted April 22, 2016 great news Butch. Our prayers were heard. gin 4 Link to comment Share on other sites More sharing options...
KATPILOT Posted April 22, 2016 Report Share Posted April 22, 2016 So absolutely fantastic Butch. Good news indeed. 3 Link to comment Share on other sites More sharing options...
MartyT Posted April 22, 2016 Report Share Posted April 22, 2016 4 Link to comment Share on other sites More sharing options...
KarenK Posted April 22, 2016 Report Share Posted April 22, 2016 So happy to hear this news. Keep holdin' on, Gracie! 3 Link to comment Share on other sites More sharing options...
R.Everit55 Posted April 23, 2016 Author Report Share Posted April 23, 2016 thank you for all the support and prayers continuing. I'm in awe of this community supporting my precious Gracie in the midst of all your grief. Gracie is just a tiny little peanut and she has no idea of all who are pulling for her. It being the weekend, I'm on grandsons duty because there is no school. So I miss being at the hospital feeling Gracie holding my pinky finger and not letting go. And seeing her little grin ever so small they may be. I've been feeling so alone. Missing my Mary. Knowing that she should be here had ALS not stole her away . But I'm just absent of words. I think having to care for the boys and dealing with and worrying about Gracie's future, I'm afraid to let my guard down regarding my beautiful bride's passing. Every now and then I get a shock of physical aching in my heart. My heart is still forever broken but I hope I've not let her down. Butch i included a pic of Gracie in her cuddly swaddling blankie and a gifted hand made hat that is too big for her little head. 4 Link to comment Share on other sites More sharing options...
Gin Posted April 24, 2016 Report Share Posted April 24, 2016 Thanks Butch for keeping us updated on your precious Gracie. I know how can hard it is for you on top of your grief. gin 3 Link to comment Share on other sites More sharing options...
MartyT Posted April 24, 2016 Report Share Posted April 24, 2016 Love and blessings to you and your dear family, Butch, and thank you so much for the update ♥ 3 Link to comment Share on other sites More sharing options...
Margm Posted April 24, 2016 Report Share Posted April 24, 2016 Thank you Butch for keeping us updated. Enjoy your grandson's. I know it is hard, all of this, and missing your wife too. Prayers are with your family. 2 Link to comment Share on other sites More sharing options...
kayc Posted April 24, 2016 Report Share Posted April 24, 2016 Butch, thank you for the update on little Gracie. I hope you enjoy the weekend with your grandsons. I think you make Mary proud! 3 Link to comment Share on other sites More sharing options...
mittam99 Posted April 24, 2016 Report Share Posted April 24, 2016 21 hours ago, R.Everit55 said: thank you for all the support and prayers continuing. I'm in awe of this community supporting my precious Gracie in the midst of all your grief. Gracie is just a tiny little peanut and she has no idea of all who are pulling for her. Butch, how can we not support and pray for your little peanut? Seeing Gracie get better day by day is just the medicine we need to see a little sunshine in our grief. I made a little smiley for her... 7 Link to comment Share on other sites More sharing options...
R.Everit55 Posted April 27, 2016 Author Report Share Posted April 27, 2016 Gracie girl will be two month old already Friday. She is a leap year baby. She weighs 3lbs 15oz. Almost four lbs! She's doing perfect. She loves eating. Her personality is shining through. She knows her momma and daddy. And her Grampy. She holds onto my pinky and just doesn't want to let go. She gets mad if I take my finger away. she needs to keep up her fight and get to five lbs and then can come home. 5 Link to comment Share on other sites More sharing options...
Margm Posted April 27, 2016 Report Share Posted April 27, 2016 That is such good news. I woke up this morning thinking about Gracie and how strong a fighter she is. How can any of us give up? Thanks for updating us Butch. 2 Link to comment Share on other sites More sharing options...
kayc Posted April 27, 2016 Report Share Posted April 27, 2016 Butch, It is such great news! She's had so much fighting to do for her life, and it's wonderful to hear she's gaining weight and her vital signs are doing well. Praying for your grandson Caleb's broken arm to heal quickly! Thank God Katie and Allen have you there helping, just as they've been there for you. You're a wonderful family! 2 Link to comment Share on other sites More sharing options...
mittam99 Posted April 27, 2016 Report Share Posted April 27, 2016 Awesome news, Butch. Praying those 17 ounces come quickly for your precious Gracie. 3 Link to comment Share on other sites More sharing options...
MartyT Posted April 27, 2016 Report Share Posted April 27, 2016 This little darling is thriving on all the love being sent her way ~ and we are absolutely thrilled to learn this wonderful news, dear Butch. Blessings to you and your family, and thank you for letting us know ♥ 3 Link to comment Share on other sites More sharing options...
BillT Posted April 27, 2016 Report Share Posted April 27, 2016 A change this morning (day 89). Accepting that the love of my life is gone, and everything in my life is gone with her. I am now a blank slate of grief. What I am other than grief, I will have to create. I have to recreate my self. Somewhat bewildering and a bit frightening. Went out and walked for an hour, contemplating this situation. 4 Link to comment Share on other sites More sharing options...
Guest Posted April 27, 2016 Report Share Posted April 27, 2016 Yes Bill, grief is a time of evolving, reinventing, re-creating, and simply learning how to exist and cope when such a significant part of yourself has been ripped from you. Walking, for me, has been good. It is a consistent distractor where I can be reminded that the world has continued spinning. Link to comment Share on other sites More sharing options...
kayc Posted April 27, 2016 Report Share Posted April 27, 2016 Brad, I just came back from walking Arlie. We were graced to see a beautiful deer looking right at us, before (from a standing position) she hurdled over a 6' fence like it was no effort. It was a treat that we both enjoyed. 3 Link to comment Share on other sites More sharing options...
R.Everit55 Posted April 29, 2016 Author Report Share Posted April 29, 2016 Our little miracle Gracie is up to 4lbs! She's so strong and amazing. ❤️. Grampy's little girl. 3 Link to comment Share on other sites More sharing options...
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